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Advocacy Work

I have taken part in lobbying efforts on Capitol Hill, moderated social media patient experience discussions, and written extensively about my experiences with Crohn’s Disease.

I’m available for public speaking events, panel discussions, conferences and other experiences where an IBD patient’s voice is a critical part of the discussion.

Connect with me!
Girls With Guts

I’m delighted to be part of the Girls with Guts blogging team. Here are several of my blog posts:

Crohn's and Colitis Foundation


I was invited to participate in a MyIBDLearning day-long information session in Tysons Corner, VA, hosted by the Crohn’s and Colitis Foundation. I participated in and moderated a panel on “It Takes a Village: Partnering with Your Healthcare Team.”

@MondayNightIBD

In October of 2023, I was invited to moderate a Patient Experience Twitter/X discussion for @MondayNightIBD (I participated as @DeviousDwyer). Dr. Aline Charabaty runs the CME program on social media that connects medical providers with patients throughout the year to discuss concerns relevant in the field of IBD research. The discussion I moderated explored the important topic of side effects of steroids in IBD patients.


https://twitter.com/MondayNightIBD/status/1714635113907032117


Digestive Disease National Coalition

Digestive Disease National Coalition


In March 2024, I took part in the DDNC two day Public Policy Forum in Washington, D.C. This included remarks and speeches from industry and government leaders as well as advocacy training. I accompanied Health and Medicine Counsel legislative advocates on a day-long tour of Capitol Hill, meeting with many members of the House and Senate to share my story as a Crohn’s patient, and to advocate for their support of bills and research funding that could save my life. I wrote about my experiences here: Advocating at The Digestive Diseases National Coalition Public Policy Forum.